Advocacy & Civil Rights
- The Arc of the United States — national advocacy, local chapters, and future-planning resources for people with IDD and families
- Self Advocates Becoming Empowered (SABE) — the nation’s oldest self-advocacy organization, led by people with IDD
- American Association of People with Disabilities (AAPD) — cross-disability rights organization and policy advocate
- Disability Rights Education and Defense Fund (DREDF) — legal advocacy, training, and public policy work
- National Disability Rights Network (NDRN) — membership group for state Protection & Advocacy systems
Self-Determination
- Self Advocacy Resource and Technical Assistance Center (SARTAC) — training and tools for self-advocacy organizations nationwide
- The Center for Self-Determination — training and consulting on self-determination principles
Supported Living & Community Inclusion
- TASH — international advocacy for inclusion and supported living for people with significant disabilities
- Inclusion International — global federation advocating for human rights and community inclusion
Health & Wellness
- American Academy of Developmental Medicine and Dentistry (AADMD) — clinical resources for healthcare providers serving people with IDD
- Special Hope Foundation — health and aging resources for people with IDD
Policy & Research
- American Association on Intellectual and Developmental Disabilities (AAIDD) — research, standards, and policy for the IDD field
- Administration for Community Living (ACL) — federal agency overseeing IDD policy, funding, and the national Protection & Advocacy network
- Consortium for Citizens with Disabilities (CCD) — coalition of ~100 national disability organizations shaping federal policy
Person Centered Planning & Practices
- National Center on Advancing Person-Centered Practices and Systems (NCAPPS) — federal initiative providing tools, training, and a resource library on person-centered thinking, planning, and practice
- The Learning Community for Person Centered Practices (TLCPCP) — global training network for person-centered thinking tools, including one-page profiles and PATH/MAPS facilitation
- Helen Sanderson Associates — international training and consulting organization that co-developed widely-used person-centered thinking tools